Sufjan Stevens Has Guillain-Barre Syndrome

Sufjan Stevens

Sufjan Stevens has revealed that he was diagnosed with Guillain-Barre Syndrome.

Last month I woke up one morning and couldn’t walk. My hands, arms and legs were numb and tingling and I had no strength, no feeling, no mobility. My brother drove me to the ER and after a series of tests—MRIs, EMGs, cat scans, X-rays, spinal taps (!), echo-cardiograms, etc.—the neurologists diagnosed me with an auto immune disorder called Guillian-Barre Syndrome. Luckily there’s treatment for this — they administer immuno-hemoglobin infusions for five days and pray that the disease doesn’t spread to the lungs, heart and brain. Very scary, but it worked. I spent about two weeks in Med/Surg, stuck in a bed, while my doctors did all the things to keep me alive and stabilize my condition. I owe them my life. 

On September 8, I was transferred to acute rehab, where I am now undergoing intensive physical therapy/occupational therapy, strength building etc. to get my body back in shape and to learn to walk again. It’s a slow process, but they say I will “recover,” it just takes a lot of time, patience, and hard work. Most people who have GBS learn to walk again on their own within a year, so I am hopeful. I’m only in my second week of rehab but it is going really well and I am working really hard to get back on my feet. I’m committed to getting better, I’m in good spirits, and I’m surrounded by a really great team. I want to be well!

Sufjan Stevens Talks His Favorite Holidays & More

Sufjan Stevens

Sufjan Stevens talked with Craig Jenkins of Vulture:

I’m very democratic in how I live and move through the world, understanding that there are many possibilities and explanations for why we’re here. This is just my personal practice. Christmas music gets to the heart of the dichotomy between the sacred and the profane. Christmas music is such a madcap genre because you get the high art, the low art, the deeply sublime, and the sacrilege. You get beautiful traditional hymns about incarnation of God’s son born in a manger surrounded by animals. That’s what I love about it, is it’s completely in the public domain at this point, and there are no rules and regulations when it comes to Christmas culture.

Review: Sufjan Stevens – The Ascension

Sufjan Stevens - The Ascension

When reviewing a new record from Sufjan Stevens, at this stage in his 20+ year career, the opening paragraph practically writes itself. You can start by recapping his much-publicized, albeit half-serious, ambitions to create an album about each US state; then discuss his (also ambitious) zany pursuits, many of which involve Christmas songs; then shift to his mid-career pivot towards spazzy electronica; and then take us to his critically acclaimed acoustic works over the past five years. Let’s forgo all that (at least any further) and just state the obvious fact that Stevens’s new record, The Ascension, adds to a singular, shape-shifting discography. Which, if you haven’t listened, or listened much, to any of this output, then I suggest you do not start with Stevens’s newest album, which is not necessarily a “for fans only” release but doesn’t consistently capture the magic of earlier records. Instead, let me suggest the first half of Illinois for dazzling orchestral Americana that sounds as unique now as it did 15 years ago; the last two songs from The Age of Adz for glitchier electronica rooted in folk, as if I’m Wide Awake It’s Morning and Digital Ash in a Digital Urn were synthesized into one record; and the middle of Carrie and Lowell for achingly vulnerable, sparsely arranged songs about abandonment, death, love, and forgiveness. 

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